Rare congenital skin disease turns little Iraqi girl into a social outcast

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Rare congenital skin disease turns little Iraqi girl into a social outcast

Wahed Haziran (Iraq) - Everyday, Haura's parents dress her in long sleeved shirts and high collars, but it's a losing battle.

By AFP

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Published: Sat 26 May 2018, 9:21 PM

Last updated: Sat 26 May 2018, 11:26 PM

Four-year-old Iraqi girl Haura should be enjoying her childhood - games in the street, tearing in and out of friends' homes and small squabbles over toys.
Instead, a rare congenital skin condition covering much of her upper body in black marks and hair has made her the object of ridicule in her village, about 200km south of Baghdad.
Everyday, Haura's parents dress her in long sleeved shirts and high collars, but it's a losing battle - her neck gives her away, to laughter and jeers.
"In two years, she will have to go to school - we really dread that", says Haura's mother Alia Khafif at the family home, in Wahed Haziran, Diwaniya province.
"How will the other children behave with her? We can't guarantee that she'll be comfortable in a school and this is the biggest obstacle for her future", sighs Khafif.
The black marks and hair cover Haura's shoulders and almost her entire back, along with much of her arms and neck.
But things could still get a lot worse. Her condition, a giant form of naevus - birthmarks or moles - make her highly vulnerable to malignant melanoma, the most dangerous skin cancer.
To ward off a potentially "fatal" outcome, the best treatments would be a skin graft and laser sessions, dermatologist Aqil Al Khaldi said. He also recommends psychological help.
But Haura's despairing family can't afford these things.
"We have seen several doctors and they all told us that she cannot be treated in Iraq. They all say we have to go to a specialist centre abroad," says Haura's mother.
"We cannot afford the journey or medical costs."
Even treatment to alleviate itching is beyond the family's reach - and the irritation gets worse with the summer heat, as temperatures regularly exceed 50 Celsius.
"What we have is barely enough to live on and to send four brothers and sisters to school," adds Khafif, whose husband is old, sick and unemployed.


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