Ice Bucket Challenge co-creator Patrick Quinn dies aged 37

The Ice Bucket Challenge, a viral activity started by Pete Frates and Patrick Quinn, raised millions for research into ALS. Quinn died on Sunday aged 37.

Washington, United States - Quinn credited with boosting ‘greatest social media campaign in history’, raising more than $220m for ALS research.

By AFP

Published: Tue 24 Nov 2020, 1:35 AM

An American man who helped drive the global phenomenon known as the Ice Bucket Challenge to tackle a deadly neurodegenerative disease has died at the age of 37, his team said Sunday.

Patrick Quinn, from New York state, was diagnosed with ALS, also known as Lou Gehrig's disease, in 2013.

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"It is with great sadness that we must share the passing of Patrick early this morning," his team wrote in a post in Quinn's ALS advocacy Facebook group, "Quinn for the Win."

"We will always remember him for his inspiration and courage in his tireless fight against ALS."

Patrick Quinn, whose personal battle with ALS helped power the Ice Bucket Challenge fundraising campaign, is seen in New York, U.S., in this undated picture obtained on November 23, 2020.

Quinn did not start the Ice Bucket Challenge, which took social media by storm in 2014, but he and his family and friends helped it become a global phenomenon.

Millions took up the challenge, which involved dousing themselves with a bucket of ice cold water and posting the video online, before making a donation to medical research and daring others to do the same.

A galaxy of celebrities, high-profile personalities and entire sports teams took part in the challenge, including Tom Cruise, Steven Spielberg, Bill Gates and even former US president George W. Bush.

The campaign has reportedly raised $220 million (Dh808 million) to fund research into ALS, whose sufferers' bodies slowly shut down as their nervous systems degenerate.

In a statement, the ALS Association thanked Quinn for co-founding the Ice Bucket Challenge and mourned his death.

"Pat fought ALS with positivity and bravery and inspired all around him. Those of us who knew him are devastated but grateful for all he did to advance the fight against ALS."

The condition, officially known as amyotrophic lateral sclerosis, is also known as Lou Gehrig's disease after a baseball player who died of it in 1941.

Pete Frates, a former US college baseball player diagnosed with ALS who also inspired the ice bucket challenge, died last year at the age of 34.