Starmer faces an investigation after 'neglecting to disclose' that Labour donor Alli covered the cost of a personal shopper, clothes and alterations
world17 hours ago
Pol Dominguez, 11, is enjoying his summer holidays in Spain. But unlike most children his age, he does not spend his days at the beach or pool, instead staying indoors to avoid ultraviolet radiation that could be deadly for him. Dominguez has Xeroderma Pigmentosum (XP), a rare disease that affects his skin and eyes. Patients are unable to repair their DNA from solar damage, which puts them at high risk of developing cancer.
His case is extreme: even brief exposure to sunlight causes serious burns. With only 2.3 cases per million live births in Western Europe — and around 100 people living with XP in Spain — the hereditary disease is usually detected early when burns appear.
Dominguez and his family, who live in Barcelona, have radically modified their habits to avoid exposure to UV radiation. To avoid severe sunburns and blistering, Dominguez wears a hood, jacket, sunglasses and gloves outside, even in winter
In summer, he stays indoors as much as possible, but when he does need to leave the house, the protective clothing is hot and uncomfortable.
Dominguez' school has adapted windows and lights so he can have as normal a life as possible, although he needs to bundle up for outside activities and carries a UV meter to check that an environment is safe.
"It's very hot and I use a fan to make it cooler," he told Reuters on one of his last days of school, using a portable fan underneath the shield he wears over his face.
Dominguez' home is UV-light-proof, with protective film on windows, blinds lowered and fans to keep the environment well-ventilated, said his mother, Xenia Aranda.
"What we do is go out at night," Aranda said. "At around 10pm we say: 'What would we like to do, Pol? Go to the beach, grab an ice cream, go for a run?'"
Pol is spending part of the summer with his grandparent Ferran Aranda in Portbou, near the French border. When the sun sets, he can finally go to the beach without protective gear. Just eating an ice cream outside or turning his towel into a superhero's cape brings a smile of delight to his face.
As heatwaves become more frequent and intense and spread across seasons due to climate change, the risks to Pol and others like him increase.
"The more hours of sunshine, the more solar damage. Therefore more illness," said Asuncion Vicente, a paediatric dermatologist at Barcelona's Sant Joan de Deu hospital.
Starmer faces an investigation after 'neglecting to disclose' that Labour donor Alli covered the cost of a personal shopper, clothes and alterations
world17 hours ago
China says Manila's actions infringe on its sovereignty
world18 hours ago
In the Czech Republic, a quarter of a million homes were without power due to high winds and rain
world18 hours ago
US-educated Jaafar Hassan, now head of King Abdullah's office and a former planning minister, is expected to replace Khasawneh
world18 hours ago
The group called on RSF and SAF to take action against 'perpetrators of war crimes and violations of international law, including international humanitarian law'
world19 hours ago
Loud booms were also heard in the region, which the military said came from missile interceptors that had been launched
world20 hours ago
The blast occurred as the victims were trying to retrieve fuel that was leaking from the truck
world1 day ago
MWL Secretary General stressed the need for unrestricted delivery of humanitarian aid to the Palestinians by opening all crossings
world1 day ago